My Time At Mayo

“No kid ever wants to be ‘so sick’ that they have to go to the Mayo Clinic.”

This was my immediate reaction when my cardiologist told me that she didn’t quite know what more to do with me.  So, she sent my medical record to Mayo, Mayo accepted me, and I was on my merry way.

Having “been there, done that” and with Mayo in my rear view, I can honestly say now that I’m so glad I had a reason (and referral) to go there.  I was honored and flattered that they wanted to see me, but even those feelings still felt wrong.  I thought maybe, worst case, I’d become a good research project for them to use, or maybe I’d (hoping) get ‘laughed out’ of the place and sent home.

All of that was true.  I was a good patient for students to study and take pictures of.  I failed a stress test with flying colors, but, despite that, I was sent home with no surgery. Instead, for now, I got an educational wake-up call about self-care and the Rx for Cardiac Rehabilitation.  The heart is the biggest muscle in our body and we should work it out.  This was a good lesson and a wake-up call – perhaps to all who are reading this.

If I may overshare (and I may, this is my blog!), I have weighed the most ever as of late and I am not proud of that.  I told the doctor this.  I said I don’t feel like “my old self” and clearly maybe that’s due to my heart feeling so irregular lately.  We could all benefit from a little cardio, it’s fair to say.  I am working with my local at-home cardiologist to get started right away.  I was told I need 30 minutes 5 days a week. Valid. Fair. “Only going to happen if you schedule it, and like most women, you’ll take care of everyone else first, and forget YOU, and I hate that that’s what’s happening so much these days!”  Direct quote, stated in a beautiful British accent, from my Mayo cardiologist.

So – I’ve been to the Mecca of Medicine, the Promised Land of all things Medically Possible, and I’ve learned a good hard lesson.  From here on out it’s Priority: ME!

This is going to be very difficult, as those of you who know and love me know:  But…. with the cheering section that I have, all things are possible!  Now, off I go.


(For pictures from my fabulous few days in Rochester, please click here!)

The April That Was…

So much has happened I’m ready for April to be over.  Or am I?

In keeping up traditions: The first Monday in April started with Opening Day – friends, baseball & a Curly W!  Does it get any better?


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The next Monday I turned 40 brunching the day before with dear friends and loving family members. 

I thought 40 would feel different and be such a big deal, but I think my making a big deal out of birthdays is over, finally!
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My dad’s birthday is just after mine – I came home from the hospital on his 30th birthday, so that means if it was the big 4-0 for me, it was the large 7-0 for him!  We threw him quite the party with a few friends from far away and his brother as an added surprise!  That was fun to pull off!

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But on my dad’s actual birthday, I was with my mom’s dad, my dear Grandpa, as he passed away peacefully at his apartment with his wife, his daughters and I (and helpful hospice folks, who can’t go unmentioned) at his side.

I cannot believe we are now busy chronicling a life of 90 years well-lived and will be celebrating them on Tuesday, May 2nd.

The obituary my mother and I wrote for his local paper, the Falls Church News-Press can be read here:  FCNP on Trollinger


Us!

Proud & Happy Grandpa @ U of M Convocation  Go Blue!

Last weekend I traveled to Providence, RI to become a god-mother for the second time.  My oldest god-daughter has turned 18 and gotten into college and is about to graduate from high school.  Where does the time go?  She was born when I was in college!

One of my friends had a baby girl on December 30th and I was honored to be asked to serve as her god-mother.  I was introduced at the reception: “This is Lauren, she’s my oldest friend!” What?  Because we go way back or because I’m 40!?  Anyway, her daughter, my god-daughter, is just an amazingly beautiful porcelain skinned babe who didn’t flinch a bit during the baptism.  I tried to celebrate the great circle of life, and it was nice to get away, but…

Closing out on a high note, I ended this last weekend of April participating in my 7th Congenital Heart Walk.  I exceeded my fundraising goal of $4000 (40 and some additional zeros!) thanks to people from just about every walk of life.  Friends, relatives, friends of relatives, Grandpa, and even my aunt’s friend whose daughter just had heart surgery in California.  We’re all in this together.  I walked with AGC, a friend’s daughter who is now 5 ½ (not 5, not 6, “5 and a half!”) and no longer in a stroller, but walking, alongside me, thriving, living and loving life – even after several open-heart surgeries.  Tick Tock We Don’t Stop! (OK except to take a pic or 2!)

The world is small, see the good in the bad.  Hug tight.  Smile.  Be present. 

Love with your heart.

 

 

 

February Flew By!

As we say goodbye to super-short Heart Month, a.k.a. February today, I want to share a few items of note:

  1.  I am 1 in 100!  
  2. I started my fundraising with the Adult Congenital Heart Association in their annual Congenital Heart Walk back in 2011.  So this year is lucky #7 & my 40th!
  3. I have walked every year (except 2012, you don’t want the why!)  with family and friends by my side all the time.  Mom, Dad, a boyfriend, a fiance, now my husband!, step-daughter, in-laws, a niece, girlfriends, and most special – the daughter of a girlfriend, who was also born with Congenital Heart Disease. (that is right, we were 2 in 100 that year!)
  4. Friends & family & friends of family amaze me every year.  This year I set a high bar for $4000 (10x my age!) and with just two weeks of fundraising complete as of today, I have raised $1445 from 20 kind, generous & super-supportive people.  That’s an average of $72.25 per person!  Average!  I gave just a measly $40 in honor of my 40 trips around the sun!  What will you give?  As little, or as much, or as clever an amount you want to donate will be most appreciated and put to good use – all for the cause!
  5. Since you know I kept track, I have to say that my first year of fundraising was my best yet – let’s do it again!  As of today I’m neck and neck with the top individual fundraiser to date for this year’s walk.
  6. Please – Join us April 29th – I promise it will be as spring-y then as it has been lately in the area! 

For me, for forty, for the other 1 in 100
Donate Today!

hover over pics to see corresponding year!

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Happy Hearts Day!

 

Hello Dear Blog Followers,

All of you are my friends, some of you are family, and most of you are long time loving and loyal supporters, and for all of you I am grateful!

I am writing today because – you guessed it – it’s Valentine’s Day and what better way to celebrate than to kick off my fundraising efforts for the annual Congenital Heart Walk. I have signed up to participate in and raise funds for the Walk on April 29th.  This year, wheelchair-free and 40, I will walk to prove that, yes, you can be born with a congenital heart defect, have three open-heart surgeries, turn the big 4-0 and still celebrate 32 years with the same St. Jude mitral valve.

“It looks like a well-oiled machine,” to quote my new Johns Hopkins-based cardiac specialist!  It keeps on tickin’…

It is quick and easy to support this great cause by making your tax-deductible donation. Below is a link to my personal page.

Whatever you can give will help – it all adds up! I greatly appreciate your support, last year, this year, every year!  Thank you!

Happy Valentine’s Day!

To make a donation online, visit my personal fundraising page.

 

Thank you, one and all, from the bottom of my ticker…pictured here!

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Happy Heart Month!

Pretty sure we can all agree that January was full of Inaugural festivities, quibbles, rants and definitely some alternative facts.  But beyond that, there was the day after which was one for the history (ahem, her-story) books as so many of us participated in the Women’s March on Washington.  It was not necessarily a march, but more of a mass amount of women showing up with creative signs, catchy chants, a crystal clear crowd, and several pink pussy hats for what turned out to definitely be something truly inspiring!

This rowdy crowd of ladies (complete with a photo bomber, the photographer’s wife, perhaps?) was very fun to share the day with, and every day since doing various outreach by email, twitter, facebooking, calling and mailing.  We hailed from Virginia, Maryland, New York, Illinois and Orlando, Florida to get city specific!  We started with breakfast with the Florida delegation at the Library of Congress and were pep-rallied with “We Will Not Go Back” chants from Senator Bill Nelson, Congresswomen Debbie Wasserman Schultz, my sister’s, younger than I, Congresswoman Stephanie Murphy & Val Demings.  Maryland’s own Steny Hoyer even made a rousing speech in a pink scarf!  It was an invigorating morning!  Then…we marched.  Or rather, shuffled. 

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Pics from The March are all here!

But now it’s February and the man who wears cheeto colored foundation has gotten me about as down as I think I can get on life, so I’m shifting focus!

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HAPPY HEART MONTH!

Why is it that the shortest month of the year gets devoted to the most important part of our bodies?  I digress, see, I’m about through being perplexed by all of these questions.

So begins the I am #1in100 campaign raising awareness about Congenital Heart Disease as an issue belonging on the forefront to those of you who know and love me.  


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Born with a broken heart…

 

A Quick Wrap-Up of 2016!

Those of you who know us and read my blog may know most of this, but for those of you who just want a fancy piece of paper to read by the fire in your most comfy winter socks, here’s a quick run-down of my (ooops, our) farewell to 2016. 

In May, Ja & I went on our honeymoon to London, Windsor and Nottingham.  It was a jam-packed & fun-filled few days.  We thoroughly enjoyed every minute and totally spoiled ourselves. #BetterLondonThanNever Click for pictures here.  

In June, I road-tripped to a little slice of heaven, right here on the East Coast: Bald Head Island. I met up with friends from Texas and crashed their family vacation for a few days and nights and it was great to see them all and play in the sand!

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July ended quickly with a lot of activity.  Thanks to NBC4’s promo on the DC Animal Welfare League’s Clear the Shelters weekend, we found ourselves an already TV-famous four-legged friend.  His name fits as he is a complete mix of shar-pei, basset hound and something else …or a few somethings, Rhino!  #Rhino2016

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Rhino bonded with Ja for a few days while I headed to Philadelphia to volunteer as a suite bouncer at the Democratic National Convention.  I worked hard, made new friends, saw old friends and most importantly:  witnessed a lot of history up close!  I’ll leave it at that, you can read this blog for wayyyy more details and pictures!

We took in a lot of Washington Nationals (NLDS Champions!) baseball, headed to Edisto Beach for a week, saw Molly turn 10 and even built an almost life-sized Tower Bridge out of Legos!  

All in all, life is good, but bring on 2017 already!!!

For the Facebook official year-in-review you can click here!  Fun Times!

 

I Can’t Put it Into Words, but…I’ll try

I feel like I’ve read it all.

I haven’t.

I feel like I’ve felt this all before.

I have.

Folks, we’ve been here before. We’ll be here again. History repeats itself.  We were “with her” and we are “stronger together” as a result. We just didn’t chant that as frequently or with such fervor as they chanted “lock her up!”

But the facts are the facts: feet on the street win elections. We should have done more. We assumed minds were made up so we ignored middle America. You cannot win with the seaboards alone, though 77 electoral votes in the West Coast were worth staying up for.

There were carbon copy flashbacks of Election Night 2000. Remember “Sore Loserman”? What’s old is new again.  We were counting down the days “until we win” while Ralph Nader’s shit show paraded back and forth in front of our Nashville HQ.

We did all we could until it was “return watch party” time.

And it got later, and later, and later.

The stage was set, the balloons ready to fall from the ceiling, and then…it got later, and an older man with not quite a full head of hair came out INSTEAD of our candidate, and the woman we had been with during the entire campaign, did not.  Remember Warren Christopher?  There was no real end to that night. Either night.  But in 2000, the recounts were underway.

After all that time and singular focus, you throw in the towel, you go to sleep, you wake up and POW!, you find yourself in a different world where the one with the most votes is NOT declared the winner.  Again.

We live in a democracy. It was a real-life (long & drawn out) episode of Survivor (or the Bachelor, or however best you can relate), someone gets voted off the island and not handed a rose. There was only going to be one winner. But for the sake of SO many, and as I had wished it in 2000, I wished it had been HER.

My lucky big-city-livin’ brother was IN the Javits Center in the heart of the excitement and energy….until it wasn’t anymore. When I asked if he got any pictures he gave me a quick reply and I wished I could have eaten my words.

“You know what I got last night? I watched a Muslim man writhe in agony on the floor in front of me. I saw a woman take off her keffiyeh and throw it in the trash.”  

I cried when I woke up and I cried again when I heard the news and time stood still. This is real. This result means so much and so many different things to so many.

Kindness & love, people!  You just never know what Tuesday meant to so many lives around us. Start talking to people. Everyone. This is an all too divided nation and it needn’t be.

I wish I had answers. Protests and riots are not the answer. We should each strive to be our better selves and hope our new president and our fellow citizens will learn to love their neighbor.

Onward!

Some articles that meant something and that I wanted to share.

Forget Canada, Stay and Fight for American Democracy

http://nymag.com/daily/intelligencer/2016/11/forget-canada-stay-and-fight-for-american-democracy.html?mid=facebook_nymag

Finish Your Ugly-Crying: Here’s What Comes Next

http://nymag.com/thecut/2016/11/finish-your-ugly-crying-heres-what-comes-next.html

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I’d be remiss if I didn’t thank our gracious hostesses with the mostest, we did have a lot of fun for a while and did punch two fists into the air when we won Virginia!  Thanks, T & L